After this meeting my GP (who is another mum at school) asked me to come in and see her. Seeing Olivia a whole head shorter than the rest of her class made her a bit worried and she wanted to further investigate her failure to thrive. Failure to thrive means you can't grow. Olivia was first diagnosed with failure to thrive at 12 months. She had bone scans, thyroid tests (two now), and has been given high calorie diets. Discovering her kidney problems at 15 months and then her gastro problems at 6 years old seemed to be the answer; but now that her urologist has discharged her, and her Gastroentologist is about to discharge her (next apt. in 3 weeks) she has only gone from 'not on the growth charts--to the 5% on the growth charts'. Which only means she is now disqualified from growth hormones (because she is technically on the charts).
Dr. Chan ordered some blood tests and then called me in. Olivia is off the charts for Coeliac Serology which is bad. Celiac disease is an auto immune disease in your intestines. In Olivia's case she can't break down gluten which means it has never been absorbed it has just been clogging her up....how this was not detected YEARS ago is beyond me! This also explains her inability to break down food and having it backed up in her large intestines--so we are finding a cause to a cause maybe. We have to go into the hospital and do a procedure where they stick a tube down Olivia's throat and into her stomach. They will do a biopsy on 4 intestinal samples--keep you posted. I will meet with the gastroentologist in 3 weeks (and probably NOT be discharged, but at least we are making some progress). We are looking into where this might be coming from--any family members with a problem? Speak up now!--it is hereditary, although only 1 in 30 people with it will manifest symptoms :) As for me, I will be having to re-learn how to grocery shop and cook because EVERYTHING has gluten in it!
Ps. Hats off to Australia--they have been the only ones to figure Little Olivia out! I was on the brink of getting referred to a pediatric endocrinologist (dr.'s who help kids grow). We were doing a standard blood test for our referral letter when we found this!